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The Arc's
Respect
PSA
The Arc of Virginia #6016
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Useful
Resources
ADVOCACY
& PROFESSIONAL ORGANIZATIONS
The
Arc of the United States
American
Association on Intellectual and Developmental Disabilities (AAIDD)
Autism
Society of America
United Cerebral Palsy (UCP)
Commonwealth Autism
Service
Virginia Association of Community Services Boards (VACSB)
A GUIDE TO VIRGINIA'S MEDICAID WAIVERS FOR PERSONS WITH DISABILITIES, THEIR
PARENTS AND CAREGIVERS.
This July 2007 guide focuses
on five of the waivers currently available in Virginia. It gives an
excellent overview of the services provided under these waivers and how to
apply for them.
http://www.dmas.virginia.gov/downloads/pdfs/ab-ltc_medicaid_waiver.pdf
- Mental Retardation (MR) Waiver
- Day Support Waiver (For People with MR)
- Individual and Family Developmental
Disabilities Support (IFDDS or DD) Waiver
- Elderly or Disabled with Consumer Direction
(EDCD) Waiver
- Technology-Assisted (Tech) Waiver
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ARE YOU WAITING FOR SERVICES?
The Elderly or Disabled with Consumer Direction (EDCD)
Waiver could provide support while you are on the waiting list for the MR or DD
Waiver. Click
here to read a PowerPoint presentation on the EDCD Waiver. (You must
have a copy of PowerPoint in order to read this presentation.)
HAVE YOU BEEN DENIED SERVICES?
If you have been denied eligibility for waiver services but
have reason to believe that you or your family member meets the criteria, there
is a legal clinic doing Medicaid Waiver legal advocacy in the Charlottesville
and Richmond areas that you may contact. It is a joint project with the Legal
Aid and Justice Center (LAJC)
http://www.justice4all.org/ and the Family Resource Clinic at
the University of Virginia School of Law
http://www.law.virginia.edu/html/news/2008_spr/familyresource.htm. In
addition to their work on Medicaid Waiver, they also work on a wide variety of
public benefit cases from Medicaid and Food Stamps to TANF and Social Security.
To request help with a Medicaid waiver appeal or other legal issues concerning
Medicaid waivers and/or other public benefits, call 1-800-578-8111 and ask for
the Director of the Family Resource Clinic, Daniel Nagin (X126) or Liz Moore
(X108) of the LAJC.
EARLY AND PERIODIC SCREENING,
DIAGNOSIS, AND TREATMENT SERVICES
Early and
Periodic Screening, Diagnosis, and Treatment Services (EPSDT) is a comprehensive
and preventive child health program for individuals under the age of 21. EPSDT
includes periodic screening, vision, dental and hearing services. In addition,
under the Social Security Act Section 1905(r)(5), states are required to provide
any medically necessary health care services listed at section 1905 (a) of the
Social Security Act to correct and ameliorate physical and mental conditions
even if the service is not included under the state’s Medicaid plan. Find out if your child can get services through this program
at the following link:
http://www.dmas.virginia.gov/ch-home.htm#EPSDT
A STUDY OF THE MENTAL RETARDATION SERVICE SYSTEM IN
VIRGINIA
This study provides an overview
of the current system of services, identifies gaps and needs, and makes
recommendations for improving the service system, including the MR Medicaid
waiver program. The study was requested by the
Virginia 2007
General Assembly.
http://www.dmhmrsas.virginia.gov/OMR-default.htm
EARLY INTERVENTION
Family Involvement Project
In an effort to
strengthen and increase family involvement in
Virginia's early intervention system, DMHMRSAS,
Virginia's Lead Agency, funds the
Family Involvement Program housed at The Arc of Virginia. All of the
ArcFIP staff are parents of children with special needs. Our staff are committed
to serving families and providers in
Virginia as we all work together to
make a good thing, The Infant
& Toddler Connection of Virginia
, even better!
EDUCATION RESOURCES
http://www.heath.gwu.edu
The HEATH Resource Center is an online clearinghouse on postsecondary education
for individuals with disabilities.
Parent Education
Training Center (PEATC)
Wrightslaw,com
Special
education law and advocacy
FetaWeb.Com
The companion website to From Emotions to Advocacy- The Special Education
Survival Guide by Pam and Pete Wright of Wrightslaw
INDIVIDUALS WITH DISABILITIES EDUCATION ACT ( IDEA) 2004 REGULATIONS
The Individuals with Disabilities
Education Act (IDEA) is a law ensuring services to children with disabilities
throughout the nation. IDEA governs how states and public agencies provide early
intervention, special education and related services to more than 6.5 million
eligible infants, toddlers, children and youth with disabilities. Infants
and toddlers with disabilities (birth-2) and their families receive early
intervention services under IDEA Part C. Children and youth (ages 3-21) receive
special education and related services under IDEA Part B.
IDEA, 2004 News, Information and Resources:
http://www.idea.ed.gov/
IDEA 2004 Fact Sheet:
http://www.ed.gov/admins/lead/speced/ideafactsheet.html
Wrightslaw
IDEA 2004 Regulations: Summary of Major Changes
http://www.wrightslaw.com/idea/law/idea.regs.sumry.chngs.pdf
VDOE
Special Education Regulations Review Process
http://www.pen.k12.va.us/VDOE/dueproc/regulationsCWD.html
VBPD
Policy and Legislation
Information
http://www.vaboard.org/vapolicy.htm
TRANSITION SERVICES
FOR STUDENTS WITH DISABILITIES
Take a look at this resource
for individuals
in the
Northern Shenandoah Valley area.
www.valleyresourcenet.org
This website was created
through a grant project administered by The Arc of Northern Shenandoah
Valley and funded by The Virginia Board for People with Disabilities. It is
still under development and comments are requested. It organizes state
and local resources relevant to people who need supports to access
community, especially those who may be new to self-advocacy. The site
includes a project manual for those who may be interested in starting
similar projects.
STATE GOVERNMENT
Department
of Medical Assistance Services (DMAS)
Department of Mental Health, Mental Retardation and Substance Abuse Services
(DMHMRSAS)
Department of Rehabilitative Services (DRS)
PROGRAMS IN STATE GOVERNMENT FUNDED THROUGH THE ADMINISTRATION ON
DEVELOPMENTAL DISABILITIES
Developmental Disabilities Assistance and Bill of Rights Act of
2000 (P.L. 106-402)
http://www.acf.dhhs.gov/programs/add/addprogram.html
Virginia Board for People with Disabilities (VBPD)
Financial assistance is provided to each State to support the activities of a
Developmental Disabilities Council in that State. Councils are uniquely composed
of individuals with significant disabilities, parents and family members of
people with developmental disabilities, and representatives of State agencies
that provide services to individuals with developmental disabilities. The
purpose of the Board is to act as an agent for systems change, capacity
building, and advocacy on behalf of people with developmental disabilities and
their families. The federal funding received under the Act is the source for the
Board's Developmental Disabilities (DD) Grant Program. The Board has the
discretion to allocate these funds through a competitive grant process, through
solicitation of work, through direct expenditure, or through any combination of
these approaches.
Virginia
Office for Protection and Advocacy (VOPA)
(An independent state agency responsible for the programs formerly
operated by the Department for Rights of Virginians with Disabilities (DRVD),
which no longer exists.)
Each state is funded to establish a Protection and Advocacy (P&A) System to empower,
protect, and advocate on behalf of persons with developmental disabilities. This
system must be independent of service-providing agencies. The P&As are
authorized to provide information and referral services and to exercise legal,
administrative and other remedies to resolve problems for individuals and groups
of clients.
Partnership For People With Disabilities
(Formerly the Virginia Institute for Developmental Disabilities (VIDD))
The University Centers is a discretionary grant program providing for
operational and administrative support to University Centers in the States as
part of a national network to support interdisciplinary training, exemplary
services, technical assistance, and information/dissemination activities.
The mission of University Centers is to serve as liaisons between academic
expertise and institutions of higher learning and service delivery systems so as
to positively affect the lives of individuals with developmental disabilities
and their families by increasing their independence, productivity, and
integration into communities.
COMMUNITY INTEGRATION (OLMSTEAD)
Read about what's happening in Virginia with community
integration. Visit the
One Community web site for more information. For the most current
information on Virginia's Money Follows the Person (MFP), visit
www.olmsteadva.com/mfp.
VIRGINIA COMMISSION ON YOUTH
In 2002, the General
Assembly passed Senate Joint Resolution 99 directing the Commission on Youth to
coordinate the collection and dissemination of evidence-based treatment
practices recognized as effective for the treatment of children, including
juvenile offenders, with mental health disorders. Advisory groups of
mental health experts were established to determine what to include in such a
comprehensive compilation. To learn more about this commission and to read a
collection of evidence-based treatment modalities for children and adolescents
with mental health treatment needs, click on the following link:
http://coy.state.va.us/Modalities/contents.htm. This resource is
tailored for parents, caregivers, educators, service providers and others
seeking current research on evidence-based treatments.
Updated
12/07/08
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